Clinical Genetics and Family dynamics 2012

Author: A. Tibben
Submitted: Tuesday 26th of June 2012 02:44:36 PM
Submitted by: egf
Language: English
Content type: Learning resource
Educational levels: expert, qc2, qc3

Abstract

The last decades, most attention has been given to individual psychological responses to genetic counseling and testing. Yet, an increasing awareness of the psychosocial challenges of genetics for patients, their partners and their core and extended families can be noticed. For disorders in which carrier, predictive, or confirmative testing is available, core time phases with salient developmental challenges of all family members involved need to be addressed, both pre- and post-testing, including a long-term adaptation phase. Professionals in clinical genetics have scarce training in family dynamics, but recognize the need for more knowledge and skills on these issues to improve clinical practice. I will introduce the Family Life Cycle model. This useful model clusters genetic disorders based on key characteristics that define types of [1-3].We will discuss its utility for assessment and care in daily practice. References: (1) DudokdeWit AC, Tibben A, Frets PG, Meijers-Heijboer EJ, Devilee P, Klijn JG, Oosterwijk JC, Niermeijer MF. BRCA1 in the family: a case description of the psychological implications. American Journal of Medical Genetics 1997;71(1):63-71. (2) Fanos JH. Developmental tasks of childhood and adolescence: implications for genetic testing. American Journal of Medical Genetics 1997;71(1):22-8. (3) Rolland JS, Williams JK. Toward a biopsychosocial model for 21st-century genetics. Fam Process 2005 Mar;44(1):3-24.

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Original version - English

abstract Tibben_Family_Dinamics_5201.pdf

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Citation

A. Tibben. Clinical Genetics and Family dynamics 2012. EUROGENE portal. June 2012. online: http://eurogene.open.ac.uk/content/clinical-genetics-and-family-dynamics-2012

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